Sam - sorry to hear about your ME. You sound a very positive person and I'm sure that will help you get through it and your garden shows you're doing well.
Chicky..I must confess...I have one too I have everything in it but have only started it this year.
Fig, I was thinking more of a flame thrower lol
Pennine, you cant do wee faces can you lol Im the same on my phone. I was diagnosed with the ME 7 years ago. Spent the first two years on crutches. I dont give up. I do all my garden myself and run my own business...ride my bike and motorcycle when I can and much more. My doc says Im an inspiration to others who give up with it.
I am very headstrong when it comes to it. However, it came out of remission 3 months ago but think its on its way back into remission again. All good. Life is too short for things to pull you down Winky face smiley
I know ME by the CFS name, my husband has had it for three years now. He can't get to the end of our road without collasping and barely lasts the day around the house, although he puts a brave face on it.
The garden must be both a source of healing and exhaustion for you Sam. The fact that you can actually complete a gardening job, however small, is an incredible achievement with this condition, I can't imagine the frustrations you must suffer.
My husband sit with me sometimes, he's not an invalid and has surprised me with some monir landscaping before now but as you might well know, its the sort of activity that will put him in incredible pain and fatigue for days after.
I keep telling him not to but its the only way he stays sane. I think the day he admits defeat, will be the end of his incredible spirit. I admire his determination to win.
All the best Sam
My daughter had ME throughout her teens and most of her twenties, following a really bad bout of glandular fever - it totally screwed up her education and she found it really hard to hold down a job because of recurring bouts of illness - however, she did make a recovery (fingers crossed) and has put herself through Uni and got a good degree, got married last year and is now managing a wedding dress shop - her immune system is poor and she takes Echinacea and vitamins etc which have really helped.
It's a really horrible condition and I send you every good wish and positive thoughts
Thankyou Winter. It is hard and I know that if I do something it floors me for days. Its the cold that hurts the most as my muscles deteriorate a fair bit in the winter so I try and keep as active as I can. Im lucky in the sense mine comes and goes but when its here, my business comes to a standstill and I sleep and rest. I know that my OH finds it hard to understand but hes getting better with me. It sounds as though you give him alot of support. Much respect to you for that. When Im bad, I have uncontrollable shaking down the right hand side, if I fall, people just think Im a drunk or Im on drugs. It can be hard but I have some great friends and mass support from OH and family
When I see what some have to put up with it makes my aches and pains nothing. I hope time will heal all.