The world's biggest study on ME/CFS has just begun, with major funding from many quarters. If you know of any UK residents over 16 that have diagnosed ME, have had it in the past, or have had an officially diagnosed form of Long Covid, participation in the study may be of interest. The project is being led by the University of Edinburgh and is specifically designed to find the role of genetics in the disease. 15 000 people have already signed up and more are needed to get data at scale.
It's the first major study designed to shine light on the devasting condition.